Angelman Syndrome

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Welcome to Kirstie's Angelman Syndrome Page

 


This page is dedicated to my daughter Kirstie who has Angelman Syndrome

 See! sometimes we do look at ourselves in the mirror - but only when we think no-ones looking!

Australian flag

You can read Kirstie's story

Photo of Kirstie and myself taken in 2008

Please help me continue to develop the resource information   on this site for the families and carers of children and adults with Angelman Syndrome in Australia.

If you have any information which can be added to this page, you can email me:-

click on the link to send me an email - don't forget to replace the word at with @ and delete the spaces      websterpaul at bigpond.com
change the word at to a @ and delete the spaces before sending
 


 
 

Photo of Kirstie and I Oct 2008 
 
 


 

How to communicate with other families

    To share your experiences with other families and carers and for further information about aspects of Angelman Syndrome.  Send an email to subscribe to:-

click on this link to send an email to subscribe to the Angelman Syndrome Listserve listserv at ucsd.edu
change the word at to a @ and delete the spaces before sending

In the body of the message type:
     add angelman-l (that is a small or lower case l not a 1)
     Leave the subject line blank


 

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to this site since 3rd July 2000